Sunday, December 11, 2011

so the holidays are nearing. for everyone else that means celebration, presents, happy, family, love, lights


. and dont get me wrong it means all those things to me too its just different. To know wth im talking about when i say 'the monster' i guess i should explain to you a bit about my smallest first cousin emma. the baby on the dalton side. emma was born normal and progressed along. she used to sit up and hold things, em used to call her sister sarah 'abba' but now she cant say that. because the monster stole it. The monster i speak of is rett Syndrome. rett is a nuerological disorder mainly affecting girls. its a mutation on the mecp2 gene on the x chromosome. can you tell how many times ive said that? too many. i dont really feel like explaining the monster anymroe and if youre reading this you probably already know what it is so im just gonna go on.


How do you know when the holidays begin? the first snow? the christmas lights on houses? what about those commercials "BUY THIS and have it shipped just in time for christmas!!!!"


the commercials like this with the little girls like this that dont stop talking about what they want


and you know what? 


i hate that little girl. all i want for christmas is for em to be able to do that. she loves dora

i just want her to have the normal life. a week without seizures. a day without pain, emotional and physical.

i hate that little girl because she gets that. What did emmy do to deserve this?

the holidays make me made because of that but i also love them cause i get to spend time with the family. My family full of weirdos. like last night my kitties (bert and ernie)(also known as the fuzzies) were laying under the tree after we decorated it. 

so i decided to get on the floor and lay with them. then kelly came down. then mom. then aunt nina. and then uncle derb decided to take a picture on my phone(hes cellphone challenged so this took time) and send it to my grandma (shes in florida taking care of my aunt who had a heart attack a couple weeks ago (COMING HOME MONDAY!!)) and pretty soon we ended up like this:

That is a family of class right there. 

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