tonight i dont have the words to say because a girl my age has passed away because of Rett Syndrome. you realize that makes FIVE girls added to the Rett community in heaven within TWO months? Five girls that never had a chance to live up to their full potential, five girls that wont see their loved ones untill they make to to heaven themselves. FIVE girls laid under the ground. FIVE. 3 of them under seventeen.
tonight my heart aches for the cure. it seems so far away. "we're so close" the doctors say. but everytime a rett girl dies it seems to get further and further away. with every sad remark about a hospital or a death, we take a step back.
tonight i cant say anything to make anyone happy or the world a better place because tonight i am sad.
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